It has been another crazy week. For someone who isn't working, I am really staying busy! Actually, it doesn't take much to tire me out these days, so I a little each day. Things got kind of rough at the end of last week and into the beginning of this week, but they are smoothing out now.
By last Friday, I had a built up a pretty significant sleep debt and was feeling pretty cranky. I have been on some medication for anxiety that was supposed to help me sleep, but I was still waking frequently during the night or waking up for several hours each night. I called my doctor's office last Friday for a change in medication. Unfortunately, the person on the other end failed to mention that my doctor was not in the office that day and so I wouldn't be receiving a call back. In desperation I went a bought Advil PM and took that Friday night. I had the best sleep that I had in a month. I felt like a different person.
The nurse from my doctor's office called me back on Monday to suggest an increase in medication. Unfortunately, I wasn't here to take her call and couldn't tell her that I thought I needed a sleep aid rather than anti-anxiety medication. When I called back I got the same rude person who answered the phone on Friday. She was just awful and without an ounce of compassion!! I let her have and then asked to speak to a manager. The manger unfortunately got the brunt of my ire. I tried to come at it from a professional standpoint, but I couldn't help crying. I explained the situation to her and how everytime I spoke with this one person, she was rude and sounded like she could have been taking my order at McDonald's. I said, " Maybe you see patients with brain tumors all the time, but my whole world has been turned upside down and I could use a little compassion." I also told her that dealing with their office has been one of my biggest stressors. She was extremely nice and let me vent and said she was sorry I had to go through so much. I felt a lot better just being able to let someone know how hard it has been. Tuesday I finally talked to my doctor's nurse and told her I thought I needed a med change. When Keith went down to pick up my prescription, he ran into my doctor. Keith told him that I wasn't doing well and he told Keith to bring me in that afternoon. Dr. B is so wonderful. We went down there that afternoon and he talked to me, checked out my neuro status and got me all calmed down. He gave me Rozeram to help me sleep. I have gotten a good night sleep for the last 3 days and I feel like a different person.
The other big story this week is that my mom got here on Monday. I started balling like a baby as soon as I saw her. She jumped right in and started helping out. She's been taking the kids to school and picking them up, doing the laundry and the dishes and just being there when I go on my crying jags. We even went to the spa on Wednesday and had lunch out.
Tuesday was significant because I went and got my haircut short in preparation for having to shave it off for the biopsy. I felt really bad, because I sort of sprung it on my hairdresser that I had a brain tumor. It's still weird when I tell people, because I feel bad that I know and they don't. A brain tumor is just not an ailment that you expect people to have. Anyway, she was great. She hugged me and offered to say a prayer for me and gave me the perfect haircut. She is also going to come to the house on Monday and shave my head for me. It means so much that she is willing to go out of her way to make me feel better. Thanks Sheri!!!
My husband also surprised me this week. Keith and Colin went out for a haircut and Keith came back with his head completely shaved!! He has really been acting like it is no big deal for me to have to do this, so when he came home with a completely shaved head, I was really touched. To think, under that tough scottish exterior, there really is a teddy bear!
So, now I just need to get through the weekend. I am a little nervous about the biopsy and as the time gets closer I think about it more. Of course, next week for the kids is super busy. Allison starts dance Tuesday and Thursday next week. Colin starts soccer on Wednesday. There is a back to school night on Thursday,too. It does make me sad that I will probably miss those things. My mom and Keith have it all under control and will do well. The kids are really excited that my mom is here and participating in their activties with them. More next week probably after the biopsy.
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